Damn I Miss Running ! 🏃🏻‍♂️

One of the hardest things to accept with PNH has been my inability to run more than a few yards without going into oxygen debt. Of course that applies to even trying to walk fast. Running has been a part of me most of my life, over 60 of my 74 years in fact. Not being able to do it anymore is depressing to say the least. 

I still try to do races when I can by showing up and doing what I can. The reality is that I can’t do much. I try not to sign up until race day now because I’m just not sure how I’ll feel when it’s actually time to show up. I’m still going to try to get the last 10 states that I haven’t raced in yet but it’s pretty iffy. Right now my plan is to finish the last 8 in the continental US by 
June! We’ll see 🤷‍♂️

Another reminder of how much I miss running is everywhere I drive I see places I would have loved to run when on the road and facing the realization that it won’t happen. 

Oh well, enough whining. I’m sitting at the VA waiting for a follow up with my gastroenterologist! 

It’s two days since my GI appointment where my diagnosis of Moderate Pancreatic Insufficiency was confirmed so now I’ll be taking enzymes now every time I eat. Up to 5 a day. I think I’m up to 20 pills a day now. 🙄. Next up a Gastric Emptying Test and then another GI appointment and a nutritionist appointment. The fun never stops. 

Yesterday I did a race. It was a night race and I took the 15 minute earlier start time because of approaching darkness. It was the Oregon Track Club monthly run walk #1 for this year. I walked it all and didn’t even try to run and had my best time of the year. It was nice being involved again but man do I miss being a runner. 








Comments

Post a Comment

Popular posts from this blog

Return to St. Louis and the ER 🙄

Image
And then the wheels came off. I started thinking about another 10 days of hotels, travel and racing and I was questioning if I could physically do it. Add to that I was feeling worse than I should have been and I decided I needed to call the rest of the trip off. I didn’t want to be even further away if I got sicker.  It turned out to be the right choice! Friday night I had a deep chest cough and was really sweaty all night so the next morning I figured I’d better take a Covid test. It was negative so I was happy about that but it didn’t make me feel better physically. I took another test that night and it was also negative.  When I got back to Stacie’s on Sunday it was early because I only left myself about 3 1/2 hours to drive. I basically just went to bed to see if resting would help and took another Covid test that was negative.  The outcome? A trip to the ER that evening because my oxygen levels were low and not improving. I wound up having a few tests and then being...
Read more

Northeastern Road Trip - Part 1

Image
Tuesday, May 31, 2022.  Hagerstown, Maryland 7:30 a.m. EST I’m lying here in bed, in a Sleep Inn in Hagerstown, Maryland asking myself, “What the hell am I doing here?”  I know the short answer is trying to get my last seven states and when I think about it during the day the answer makes sense. But when I wake up in the middle of the night and allergies seem to be kicking my ass the bigger question is, “Why”? It’s now Tuesday morning the last day of May and actual races start tomorrow morning. Then I race three days in a row. Im hoping once the actual races start I can be a little more sure that it’s worth it. Right now after my second day driving and second night in a motel I seem to have more doubts than answers.  Oh well enough pontificating. Time to go get breakfast and see what the day brings.  Tuesday, June 7,  2022. Grover, Missouri 10:17 a.m. CST Well it’s been a week since that last post and to say a lot happened since then would be an understatement....
Read more

Heading Back to Oregon

Image
I guess the best news about the trip home is that it was uneventful. The bad winds all across Wyoming didn’t really affect the drive. An advantage of not driving a high profile vehicle. I didn’t stop at any of the places we’d stopped before for pictures since nothing had really changed and I wanted to get home. I did stop and take a picture of Devil’s Slide in the canyon on the way to Ogden. It’s an interesting natural feature.  To celebrate my final night on the road I got a Little Caesar’s thin crust pepperoni, a four pack of small Cabernet and Charlie and I rested up for the last push home.  Forgive the fat 😂. Here’s what my stomach still looked like 10 days after my last blood thinner shot that I got in the hospital. 😳 We made it home tired, disappointed that I had to cut the trip short but still happy to be back in Oregon. 
Read more