More Health Questions! 🙄

February 28th was National Rare Disease Day so what better way to “celebrate” that than to get a CT Scan to find out if I in fact have a second rare disease. 







I went in to see the GI doctor because my digestive system has been really screwed up for over a year. Blood work showed that I have  ModeratePancreatic Insufficiency which falls under the rare disease category. Hopefully I’ll get some answers when I go back to the GI doctor next week. 

In the meantime labs and oncologist today and treatment for PNH tomorrow. Life goes on. 

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